Thursday marked 10 weeks since my surgery. Back at the end of June, I had eight inches of my small intestines removed. Specifically, my terminal ileum has been the area where my Crohn's Disease has lived for the past several years. It came to the point where the best way for relief was to get rid of the infected portion. (if you want more about how I am now scroll to the bottom)
After surgery, in my hospital room. I don't know why I took this photo, but I also sent my Qgroup a strange video that I have very little memory of making. Pain killers and anesthesia... crazy mix. So, I said they took our eight inches. Did you know most people have about 25-feet of small intestines and that you really only need about 3-feet for it to effectively do it's job (absorbing nutrients). We weren't sure going in how much they would have to remove, but the doctor told us they would be able to tell by looking at the exterior of my intestines which areas were infected and needed to be removed and reconnected.
I wore these leg massager things to make sure the blood kept flowing on my legs and to reduce the blood clot risk. I was in the hospital Thursday through Sunday. The picture on the right was at the foot of my bed. One day I saw that fish move. I know that's crazy, I even told Nate that I knew it was crazy, but I still saw it happen (pain killers).
Nate took good care of me. He only left once, while my mom stayed, so he could check on our kids and get a shower.
We thought I would go home Saturday, but things in my body weren't quite working by the time the doctor came by Saturday morning so I had to stay one more night.
I sure was glad to get home to see these two. The hardest part since has probably been that I've had a 10 week lifting restriction on anything over 20 pounds. Ila weighs about 30 pounds. She learned to climb on my lap and Brixton learned how to carry her and help get her into her carseat.
Nate's family has a big 4th of July celebration every year so I made myself go. It was the most activity I had had and was less than a week after surgery. I survived, but learned that night that I was allergic to my pain killers. I had a strange rash that had worsened since leaving the hospital. I called the on call doctor and they determined that had to be the cause of it.
Another adjustment has been the extra scars on my belly. My belly button has always been different. I had a hernia surgery when I was a toddler so it was scarred from that. Then, I had my gallbladder out about 11 years ago and that increased the scar and this time they cut straight through my belly button. At first I thought I just wasn't going to have one any more (how weird is that?) but as the healing has progressed it's not as awful as I thought. The picture on the right is of what it looks like now. My mom said, "Well, at least you don't wear bikinis."
I've chosen to drastically change my diet for now, which has been tough and is hard for some of our family to understand. Technically I do not have Crohn's right now. They removed all of it. I go back in 6 months to see if it's returned. While they were able to remove it there's about a 90-percent chance or recurrence in people who have it in the same place as I have. Because of that, I'm trying to avoid foods and ingredients that I know have been triggers for pain in the past. I'm basically on a paleo diet - no dairy, gluten, grains and processed sugars.
It's been an experience learning how to make some things I enjoy in a new way. I've found some good snacks and some not so good, but I've slowly adjusted and have managed to have more self-control than I have in the past. Sometimes I just want to eat what's easy, but I know that taking care of myself is important right now.
I've also started a new medication. No more Remicade infusions. I'm now getting Stelara injections every 8 week. The goal of this is to keep my intestine from quickly getting reinfected. Studies show being on a medication like this for at least a year after can help patients achieve longer remission. I'm hoping that happens but I am prepared that it could come back at any time. Maybe, if it does come back, I can make it another 10 years before surgery. I say that because 10 years ago is when I was diagnosed.