It's Progress... but not enough

I've been avoiding this post for a while, partly because I've been waiting and waiting and waiting on more results.
Earlier this month I found out that my Remicade infusions have been working, but not as well as my doctor or I would like. What I would like is remission. I'm not there. The good news is I have had some healing. While I try to be happy about that the reality is I'm still sad about that because it means so many things in my life will remain in limbo. My doctor took some biopsies from my small intestine. Some showed to be scar tissue and some showed to be active Crohn's. My doctor wanted to have some more results so he had me get blood work done too. I waited forever on that because the lab somehow faxed my results to the wrong place. When they finally got them it showed my levels of whatever they are judging were better but still not great.
So, from there my doctor recommended adding either a drug called Azothioprine or Entocort. Immediately I went to my pharmacist friends about what to do. Drug A is one I have already heard negative things about. It is incredibly powerful and comes with some awful side effects. Drug E is only taken for three months and is one I have taken technically three times before. The first time I took it I went straight into remission. The second time I didn't follow instructions which forced a third time in which it did not help much at all. My good friend/pharmacist Kacee from college said she was not comfortable with me taking Drug A. Apparently there are numerous cases of people taking that drug with Remicade and then being diagnosed with Lymphoma. So I picked drug E.
My nurse called yesterday to give me the instructions -- 3 pills each morning for 30 days and then 2 pills each morning for 30 days and then one pill every other day for two weeks and then.... I lost track. She said it should all be written out on my prescription. I hope so.
I need to go pick up the meds and will start them this week. Here's hoping things are better in three months. I'm hopeful, since my levels are better, that this will work like it did 5 years ago and send me in to remission.
If it doesn't, I have come to accept that surgery may not be a bad option. While it is not what I have necessarily wanted I feel that it may be better for my body to move forward from a healthy point rather than trying to reverse damage. I'm making a lot of healthier choices and it could work to my advantage.
If you are reading this I would ask that you pray for my body to get better and that this medicine will work. I'll go back to my doctor in November and probably at the end of the 3 months. I'm hopeful this will help.